悉尼大学的最新研究发现,年轻患者的慢性疾病症状常被医疗工作者误诊为焦虑或正常生长反应,造成诊断延迟数年,并加剧患者对自身身体的怀疑。1该研究访问了33名患有自身免疫疾病、子宫内膜异位症等慢性病的澳大利亚年轻人,已发表在《应用青年研究杂志》上。1澳大利亚估计有多达五分之一的18岁以下儿童在某个时期会经历慢性疼痛。1
案例人物Jaimie Sheil的症状被误诊为焦虑长达7个月,之后才确诊为慢性炎症性脱髓鞘多发性神经病变(CIDP),随后又被诊断出患有视神经脊髓炎。1研究发现,医疗工作者关于年龄和性别的刻板印象导致年轻人自我怀疑,甚至避免寻求医疗帮助。1研究负责人Dr Imogen Harper表示:"即使在他们获得诊断后,脑子里那个声音说'也许你其实没那么病,也许你在戏剧化,也许没那么糟',这种声音不会消失。"1
针对这一问题,皇家澳大利西亚医师学院儿科部门主席Dr Niroshini Kennedy指出该学院在4月推出了适合青年的医疗保健立场声明。1研究人员建议医疗提供者需要审视并反思自身关于年龄、性别等方面的刻板印象。1
A University of Sydney research study has revealed that young patients with chronic illnesses frequently experience diagnostic delays when their symptoms are misattributed by healthcare providers to anxiety or normal developmental changes.1 The research, published in the Journal of Applied Youth Studies, interviewed 33 young Australians living with chronic conditions including autoimmune diseases and endometriosis, documenting how medical professionals' assumptions about youth health undermine patients' confidence in their own bodies and discourage them from seeking further care.1
The findings suggest that up to one in five Australian children under 18 experience chronic pain at some point in their lives.1 One participant, Jaimie Sheil, had her symptoms dismissed as anxiety for seven months before receiving a diagnosis of chronic inflammatory demyelinating polyneuropathy (CIDP), a rare autoimmune condition.1 Sheil was subsequently diagnosed with optic neuromyelitis, another rare autoimmune disorder.1 According to Dr. Imogen Harper, the study's lead researcher, the psychological impact of misdiagnosis persists long after diagnosis: "Even after they get a diagnosis, that voice in their head saying 'maybe you're not actually that sick, maybe you're being dramatic, maybe it's not that bad' doesn't go away."1
The research underscores the need for healthcare providers to examine age and gender stereotypes in their clinical practice.1 In response to these findings, the Royal Australian College of Physicians released a youth-focused healthcare position statement in April, according to Dr. Niroshini Kennedy, chair of the college's paediatrics department.1
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