36岁的渐冻症患者杨帅帅决定在离世后捐献大脑组织，以期为医学界寻找这一绝症的病因贡献力量。1杨帅帅于2022年6月开始出现右手无力症状，2023年3月在华山医院被正式确诊为渐冻症。1在得知确诊结果后，他表现得平静，并于2023年底参观了国家脑库，随后表示要说服家人同意捐献大脑。1
作为国家脑库的志愿者，截至目前，国家脑库已存放有700多份捐献的大脑组织样本。1杨帅帅在2026年9月13日度过了39岁生日，此时他的全身已只剩双眼可以自如活动。1据了解，渐冻症患者的平均生存期为3至5年，全球约有50万名患者罹患此病。1
Yang Shuaishuai, a 36-year-old diagnosed with amyotrophic lateral sclerosis (ALS), has committed to donating his brain tissue for medical research after his death.1 He first experienced symptoms in June 2022 when his right hand became weak, and was confirmed to have the disease at Huashan Hospital in March 2023.1 By September 13, 2026, on his 39th birthday, Yang's condition had severely progressed, leaving only his eyes able to move freely.1
Yang became a volunteer with the National Brain Bank after visiting the facility in late 2023, and has resolved to convince his family members to support his brain donation.1 The National Brain Bank currently stores over 700 donated brain tissue samples.1 ALS patients typically have an average survival period of three to five years, with approximately 500,000 patients worldwide.1 Yang remained calm and composed when receiving his diagnosis at Huashan Hospital, showing no signs of panic.1 Through his donation, Yang hopes to contribute to the medical community's efforts in uncovering the underlying causes of ALS.1
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